So I have yet another issue going on with my body isn’t that just absolutely wonderful?
I know that RA can effect the joints of course we all know that, we all know RA will eventually effect our organs if we go untreated. I know all that and yet hearing the chest pain that I am experiencing is Pericarditis it scared me. Learning my RA is doing more to my body than just screwing with my joints made me realize I desperately need treatment, it is not a cure by far but it would slow the progression of my RA and that is what I need.
My treatment was a biologic DMARD called Ilaras that was for JIA since my symptoms present like JRA and my Rheumatologist at the time believed it would help me, I am not able to take any other biologic DMARDS like Remicade, Humira, or Enbrel because they can cause Multiple Sclerosis in those who have a family history of MS, which in my case I do. Illaras did help me, but I ended up losing my Rheumi and my pain specialist and now I am in need of another. I no longer am taking the Ilaras, the methotrexate, Prednisone, Gabapentin, Nortryptaline or the Tramadol. Everything of mine got cut cold turkey and that was not good for me either.
I also have symptoms of Meralgia Paresthetica, which develops when my Lateral Femoral Cutaneous Nerve that runs through my pelvis and groin into my thigh muscle becomes compressed. It causes a somewhat numb feeling on the outer or lateral thigh, I say somewhat because at the same time that it is numb it feels like someone is taking a flame to your leg with a burning sensation like no other. For me it’s constantly numb and any light touch, including a skirt or pants rubbing on it, can cause a burning and stinging. Now a deep touch doesn’t do that I can press on it and it doesnt hurt, but a light feathery touch is unbearable at times. Nights are the worst, I lay on back and within 30 seconds there is shooting burning pain going up and down the outside of my thigh, I force myself to turn over and it lessons but it is still there. So what is the treatment for all this? Gabapentin! My abrupt stop of my Gabapentin feels like it increased the amount of pain I feel from this nerve compression.
Now I have to start over visit my Primary who refers me to a Rheumi and Pain Management/Neurologist and now also to a Cardiologist to take a look at my heart. Waiting lists are a year-long, and then I have to redo all the tests to prove I have all the diseases I was already diagnosed with for the past 12 years. Oh the wonderful world of doctors who order more tests than necessary. I used to love doctors, hell I wanted to be one and I still do, but being on this side of the needle is very different.
The new year is coming up and its time to fix all this, if not for me for my family. I hate feeling less than and this whole year was a year of me being unable or less than to everyone and everything. I am done with that. Remember warriors to set realistic goals this season, know your limits and be careful, setting your expectations so high sometimes only results in disappointment which feeds that lovely, here forever house guest depression. Realistic goals, not extreme goals, you will get there one step at a time. Until next time, warriors …
“The pain you feel today, is the strength you have tomorrow.”